Ethan Szuba, 17, of Howell, is heading to Washington, D.C., on behalf of the Epilepsy Foundation of Michigan to share his story with members of Congress and advocate for issues important to the epilepsy community. Szuba will be participating in the Epilepsy Foundation’s Teens Speak Up! and Public Policy Institute conference, which brings together over 150 advocates from across the country to Washington, D.C. for advocacy training and meetings with lawmakers.
“We’re proud to have Ethan represent the over 100,000 people in Michigan with epilepsy,” said Brianna Romines, president of the Epilepsy Foundation of Michigan. “We’re lucky to have talented young advocates fighting for our community.”
Szuba, who attends Detroit Catholic Central High School, will have the opportunity to meet with his members of Congress and their staff. During the meetings, he will share his experience about what it is like to be a young person living with epilepsy, and he’ll advocate for increased federal funding for epilepsy programs and research at the Centers for Disease Control and Prevention. Programs such as these are crucial for raising public awareness and training individuals to properly care for someone having a seizure.
Upon returning home, Szuba will embark on a year of epilepsy advocacy in Livingston County. He hopes to raise awareness about the importance for epilepsy treatments and a cure.